VladTepes
6th November 2014, 04:04 PM
My niece Sophie is a beautiful girl, with Kabuki Syndrome.
The cost for her therapies is high (~$17K per annum) and my sister is doing it tough.
There is a way to help her, if you are so inclined.
Sophie is, believe it or not, a registered charity.
The Developing Foundation Inc. (http://www.developingfoundation.org.au/fundraiser/event/sophie-s-squad)
Donations are tax deductible and help defray the very high costs
associated with Sophie’s therapies. (My sister has to provide evidence of
monies spent etc in order to access the donations, so it’s all above board)
If you are able to assist, even with a small donation, I'd appreciate it.
For a deeper insight into the challenges faced by parents of a Kabuki child, my sisters blog can be found here: Peekaboo Kabuki | Special Needs Parenting – Loving a Child with Kabuki Syndrome and Aspergers (http://peekabookabuki.com/)
Thank you.
The cost for her therapies is high (~$17K per annum) and my sister is doing it tough.
There is a way to help her, if you are so inclined.
Sophie is, believe it or not, a registered charity.
The Developing Foundation Inc. (http://www.developingfoundation.org.au/fundraiser/event/sophie-s-squad)
Donations are tax deductible and help defray the very high costs
associated with Sophie’s therapies. (My sister has to provide evidence of
monies spent etc in order to access the donations, so it’s all above board)
If you are able to assist, even with a small donation, I'd appreciate it.
For a deeper insight into the challenges faced by parents of a Kabuki child, my sisters blog can be found here: Peekaboo Kabuki | Special Needs Parenting – Loving a Child with Kabuki Syndrome and Aspergers (http://peekabookabuki.com/)
Thank you.