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View Full Version : This looks promising in my fight against MSA



Roverlord off road spares
20th May 2021, 01:16 PM
Bit of hope for us sufferers of MSA with this research and clinical trials. I asked my Neurologist about it and mentioned there might be Australian trials offered and I that l would be willing to participate if it buys me more time. The draw back though if it is approved for use then cost maybe a factor as rare diseases don't have the numbers for economics so it may be expensive and unaffordable.

https://defeatmsa.org/research-update-from-biohaven-re-verdiperstat-bhv-3241/?fbclid=IwAR13oS9z0CODXPs0Vfr9dOgrbNYzSkXuuHzodWxG _HN83FYPmRqIaydGgJc

Tins
20th May 2021, 02:04 PM
cost maybe a factor as rare diseases don't have the numbers for economics so it may be expensive and unaffordable.


All the more reason for it to go onto the PBS ffs.

350RRC
20th May 2021, 05:54 PM
Go for it Mario.

The potential large cost is often reduced because of the rarity if it gets to the PBS,.

take care, DL