If you are in need of a smile...

[spudfan]

Have not been here for awhile. You will gather from various postings that things got a bit rough healthwise with our daughter Sarah. Things seemed to have stabilised so normality is slowly returning. Anyway below is a photo taken last weekend when Sarah visited Santa while out shopping with my wife. As you can see she is really happy and excited to see Santa. He still calls to our house on Christmas for Sarah, who will be 30 years old at the end of December.
This is typical SARAH,happy and loving. She leaves the worrying to us.
Hopefully this will add a little light to someone's day.

[TonyC]

Good to see you back Spud.
Glad to hear life is getting back normal.
Tony

[BradC]

This is typical SARAH,happy and loving. She leaves the worrying to us.
Hopefully this will add a little light to someone's day.

Thanks Spud. It did. 30 huh? Does that make you feel old?

A "few years ago" I was sitting with my grandad and lamenting I was 41 and how did I get here? He said "41? My son just turned 70, how do you think I feel?". He turned 104 this year. He's fit and healthy, but he doesn't know who I am anymore.

My Cousin wasn't expected to see her 18th birthday. She had a "rare disease". 12 known cases in the world. She made it to 46. Celebrate every win. We'll celebrate them with you, because despite the mire of crap you wade through on a daily basis I suspect every day is a bonus.

Nice photo!

[spudfan]

Thanks Spud. It did. 30 huh? Does that make you feel old?

Yes one does feel the time beginning to whizz by. We wonder in ten years time, who will be looking after who?
Also in years to come when our journey has come to an end Sarah will still need looking after.

[BradC]

Also in years to come when our journey has come to an end Sarah will still need looking after.

Yeah, that's always a concern. We have various government systems in place for such an eventuality, but there is no guarantee they'll still be in place after the next election.

[spudfan]

Thank you all for the good wishes. We had a relapse (reoccurence) about two months or so after we got home after the hospital stay. This time we managed to get an appointment with the GP. She got our daughter stabilised and we got a prescription for antibiotics which we started straight away. The GP gave our daughter an injection to stop her throwing up other wise oral antibiotics would be ineffective. She did give us the paperwork to go to hospital with our daughter but we were reluctantant to do this. The intravenous antibiotics, though very effective, were very sore on our daughter and she was dreading this.
She allowed us two days to work on it at home but if things were not improving it would have to be the hospital.
We managed at home. Kept the GP updated with phone text and photographs and with extra antibiotics got things back to normal
Another reason for not wanting to go to hospital was a covid outbreak in the ward that we had been in. That was the reason we got home in the first case and went back later to get the internal thing done (see original posts on this). They were worried our daughter would inadvertantly pick up an infection which would be very sore on her system.
Anyway things are going well but vigilance is the order of the day.

[Tins]

Bloody hell, Spud. That’s terrible mate. I really hope you, and your lovely daughter, get through this soon.
I have heard that your health system is under a lot of stress but I didn’t know it was like that. So bloody difficult for people with special needs. We are lucky here. One thing we do well is our health system. And we make the mistake of taking it for granted.
I know it sounds like a platitude but it isn’t. My thoughts are with you.