I sympathise with you. My evil sister ( dont ask) has this disorder and also has a brain disease called MELAS. It was supposed to kill her within 5 yrs but that was up 4 yrs ago. Bugger. She has a lot of ulcers on her leg which dont heal up. They wanted to take her leg, but bcoz of the blood disorder she would bleed out if they keep her on warfarin but with out the warfarin she would die from blood clots. Clexane helps but she cant take it for too long.
Cheers Rod



IT'S A BUGGER GETTING OLD
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