Thread: Pityriasis Rubra Pilaris - PRP - anyone have it??

Originally Posted by V8Ian

I hope you can't catch it shaking hands!

Do the expert know how it's contracted, Ean?

No and No
- cant tell me why people catch it , how to cure it, or how long it will take to go. Best guess is somewhere between 18 and 36 months. All they do is manage it and only 60% of people respond to the treatment. I guess I was just one of the lucky ones whose number came up and ended up catching it.

Cheers Ean

Bloody hell, Ean, that's nasty. May your time with it be swift.

Sounds like a very nasty condition to endure, but on a positive note at least it is temporary and not with you for the rest of your days.
When it moves on does it leave behind any legacies, or will you be completely free of any symptoms?
Are there any areas or geographical regions where it is more prevalent, either in Australia or Worldwide?
Is there anything that makes one susceptible target to it, or is it just purely random?
I hope for your sake it decides to move on early.

Cheers, Mick.

Originally Posted by mick88

Sounds like a very nasty condition to endure, but on a positive note at least it is temporary and not with you for the rest of your days.
When it moves on does it leave behind any legacies, or will you be completely free of any symptoms?
Are there any areas or geographical regions where it is more prevalent, either in Australia or Worldwide?
Is there anything that makes one susceptible target to it, or is it just purely random?
I hope for your sake it decides to move on early.

Cheers, Mick.

Gday Mick,

I am told that 1 day I will wake up and the redness will be faded and in a few days gone and my skin will stay where its meant to and I will be back to normal . There is no recorded cases of people having lasting effects or even a re-occurrence of it . Its basically your body resetting its immune system. The specialist I see tells me he sees about 2 people a year with it and he diagnosed me within 30 secs of walking in the door. what a relief that was....
I guess the higher the population the more chances of people having it , so I am guessing Europe and America would have more cases , but funnily enough most of the stuff I was given to read when first diagnosed was medical info from New Zealand. I haven't reached out to any of the oversea's internet forums yet as I am in a good space at the moment , I didn't expect to find anyone on here with it , but , I thought if by chance 1 person had it or a family member had it they may want someone to talk to.

Cheers Ean