Those of you that know that I have urology issues and have to use self catheters, the cheapies and painful ones cost $1.09 per pee. Recently I had to change to better ones to prevent the constant infections I am getting. The new ones are $4.90 a pee , single use I need to go at least 4 times in a 24 hour period so that works out to $7,173 a year at least to pee for me. Yesterday i was at my urology specialist appointment and she is concerned that I do not empty myself often enough and this also increases the risk of further serious infections and further damage to the lining of my bladder for the over extended bladder..
So she is getting some one to talk to me about bladder re training and voiding more often. As I have no sensation of needing to go until It is a bursting volume I may have to do it on timed intervals. I explained to her the it is already a financial burden on me and then increasing the quantity of of daily catheter usage is financially crippling. I informed her that the Fed government funding is only $580 per year for continence aids, the Vic govt SWEPS program has little funds and there is a 12 month wait, as I'm on the waiting list.
My GP went to India last week and said he would investigate if there were a cheaper catheter made in India at the pharmaceutical manufacturers, maybe I could import them, but I saw him today and we had no luck.
The NDIS is a mine field so arn't holding my breath on them, got more forms to fill out and cross the Ts and dot the Eyes,
I asked Urology about having the permanent tube fitted in my stomach and wearing a bag and again was told as well as by other specialists that it would not be suitable at this time and catheters are the best option form me.
Oh well. suck it up again fella. I wonder what happens to people on the pension


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