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Thread: I finally got a diagnosis.

  1. #1
    Join Date
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    I finally got a diagnosis.

    After deteriorating health over the past few years and having numerous specialists look at me and feeling like a hypochondriac some times as no one could come up with what I have, I finally have an answer.
    Thanks to my new Gp who was getting worried about my presentation changing, taking longer to getup and walk to his consultation room every visit he sent me for a Parkinson's check up with a neurologist who specialists in brain disorders and diseases. I have been Diagnosed with MSA ( under the Parkinson's umbrella) This disease is fatal and has no cure, but I can accept that, at least I now know what I have and can try to come to terms with it.

    Will start medications soon after some more tests and hopefully my quality of life may improve. I'm sick of sitting down and lying down all the time due to dizziness and falls risk.
    The biggest issue I have is the unbelievable Pain from Cramping muscles in my back and stomach area when I stand for 5mins and lean forward to butter some toast or shower toilet etc. the meds ones sorted should ease this hopefully. Heather has to help me dress and put me to bed, dry me after a shower ,unfortunately I'm gaining weight all the time due to lack of exercise so I worry she will hurt herself. One in bed I find it hard to move so she moves me about.

    Got a bit of a road ahead, but such is life. just felt I would explain why I haven't participated here for a while.
    Cheers, Mario

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  2. #2
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    p38arover is offline Major Part of the Heart and Soul of AULRO Gold Subscriber
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    Jeez, sorry to hear that Mario.

    I hope the new meds at least alleviate the symptoms.
    Ron B.
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  3. #3
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    What dreadful news, my thoughts and prayers go to you.
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  4. #4
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    That really sucks Mario.

    Dad had Parkinson's, a different strain to yours and the meds were quite effective.
    They kept the severity of the symptoms at bay for 25 years but he did used to joke he rattled with the number of meds he was on!

    Hopefully once they fine tune your regime it gives you quite a bit of relief.

  5. #5
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    Got a bit of a road ahead, but such is life. just felt I would explain why I havent participated here for a while.
    Cheers, Mario
    Jeez, that's terrible. Just the last few days I have been going to post and ask how you were going, but could not decide where to post.

    Hopefully the Meds will give you some relief from pain, and even though it is not a good prognosis, at least knowing what it is should be a load off your mind.

    Best regards to you both. Kevin

  6. #6
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    Sorry to hear that mate, but don't despair. My mother in law lasted 14.years after being diagnosed. She was bright until the end.
    2009 Defender 110 2.4. ARB bulbar, Ironman winch, Safari snorkel, Steinbauer chip, AP HD clutch, Lightforce spots, larger tank, Off Road Systems drawer, Traxide 160 controller, Tekonsha brakes, Mulgo seat runners, Uniden UHF, Nuggetstuff seat corners, breathers, Polaris GPS.

  7. #7
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    Thatís terrible news Mario, but some relief in getting a diagnosis and the opportunity for treatment and improved quality of life.

    I hope the treatment is fast and effective.
    L322 tdv8 poverty pack - wow
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  8. #8
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    Thanks All.
    I.m getting a 24 hr blood pressure monitor fitted on Friday. The constant feeling faint from very low blood pressure is driving me crazy. It's really scary when you start getting the head rush and the my muscles give way and the heavy body feeling comes and I'm going to crash again . Every time it happens I think is this the end coming. Also will have to see a cardiologist and get some type of scans done.
    Couldn't come at the worst time, IT'S FISHING SEASON.

    "Mail Order Specialists for Land Rover Vehicle Spare Parts"
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    Ex 2000 Discovery 2 ES V8 - Icelandic Blue (Sold 1/09/2017)
    Ex 1996 Discovery 1 V8 5 Speed- Willow Green

  9. #9
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    My thoughts are with you and Heather, Mario. With the exponential expansion of medical knowledge, who knows what the future holds.
    Please let me know if I or the forum community can be of any ​assistance.
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  10. #10
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    We haven't "met" as such Mario, but I have read your Health Posts over the last year or so.

    Sorry to hear this with anyone, but as my olde Sparky would say if he wasn't a Cot Case himself after falling foul of some mysterious Hong Kong Ailment on his very first OS trip. ( is, "What can you do?" as he shrugs his shoulders. His working life is buggered.

    Chances are & with a bit of luck, your diagnosis may be incorrect. Has been known to happen before & well publicised.

    How many other opinions have you had? Me, I'd be getting a couple more. It might be the same result but at least you have chased it to its conclusion.

    In the meantime keep your chin up & I will hope for the best for you.

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