Aww Roverlord, I am sending the biggest gentlest hugs. Do not feel bad for venting, diseases and disability is also a grieving process of loss in a very different way as abilities and loss of independence and everything that comes with
I know you have loved ones there with you, you have all of us here too.
Whilst I have a different disease (that is not thefast, aggressiveone you are sharingyour struggles with), I do know that loss of ability, function, being fiercely self sufficient and independent and losing that. And also what it's like being unable to cut up your own food. As well as needing help with toileting too sometimes. (And embarking on plans that then turn out to not work out as intended) I am telling you this so you know that there is some one here who understands, truly, deeply, completely.
Pain is such a cruel beast too.
I hope NDIS hurry up and sort out what they need for you
If you or Heather need to talk to anyone about anything,even just to have someone listen in a completely safe, judgementfree zone, my door/phone/email/ etc is always open.
I am so very sorry that this is happening. Disease always seems to attack the nicest people and I want to go punch it in the face for you
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