I finally got a diagnosis.

I hear a lot of people have trouble with accessing the NDIS so here is a list of the NDIS so called "approved conditions".
I didn't know there were so many different diseases out there .

I qualified under list B Extrapyramidal and movement disorders Shy-Drager syndrome /Multiple System Atrophy /Striatonigral degeneration (MSA-P)/ Sporadic olivopontocerebellar atrophy (MSA-C)

List A - Conditions which are likely to meet the disability requirements in section 24 of the NDIS Act.

Intellectual disability diagnosed and assessed as moderate, severe or profound in accordance with current DSM criteria (e.g. IQ 55 points or less and severe deficits in adaptive functioning).
Autism diagnosed by a specialist multi-disciplinary team, paediatrician, psychiatrist or clinical psychologist experienced in the assessment of Pervasive Developmental Disorders, and assessed using the current Diagnostic and Statistical Manual of Mental Disorders (DSM-V) diagnostic criteria as having severity of Level 2 (Requiring substantial support) or Level 3 (Requiring very substantial support).
Cerebral palsy diagnosed and assessed as severe (e.g. assessed as Level 3, 4 or 5 on the Gross Motor Function Classification System - GMFCS).
Genetic conditions conditions that consistently result in permanent and severe intellectual and physical impairments:

Angelman syndrome
Coffin-Lowry syndrome in males
Cornelia de Lange syndrome
Cri du Chat syndrome
Edwards syndrome (Trisomy 18 – full form)
Epidermolysis Bullosa (severe forms):

YR
Autosomal recessive dystrophic epidermolysis bullosa
Hallopeau-Siemens type
Herlitz Junctional Epidermolysis Dystrophica

Lesch-Nyhan syndrome
Leigh syndrome
Leukodystrophies:

Alexander disease (infantile and neonatal forms)
Canavan disease
Krabbe disease (globoid cell leukodystrophy) – Infantile form
Pelizaeus-Merzbacher Disease (Connatal form)

Lysosomal storage disorders resulting in severe intellectual and physical impairments:

Gaucher disease Types 2 and 3
Niemann-Pick disease (Types A and C)
Pompe disease
Sandhoff disease (infantile form)
Schindler disease (Type 1)
Tay-Sachs disease (infantile form)

Mucopolysaccharidoses – the following forms:

MPS 1-H (Hurler syndrome)
MPS III (San Fillipo syndrome)
Osteogenesis Imperfecta (severe forms):
Type II - with two or more fractures per year and significant deformities severely limiting ability to perform activities of daily living

Patau syndrome
Rett syndrome
Spinal Muscular Atrophies of the following types:

Werdnig-Hoffmann disease (SMA Type 1- Infantile form)
Dubowitz disease (SMA Type II – Intermediate form)
X-linked spinal muscular atrophy

Spinal cord injury or brain injury resulting in paraplegia, quadriplegia or tetraplegia, or hemiplegia where there is severe or total loss of strength and movement in the affected limbs of the body.
Permanent blindness in both eyes, diagnosed and assessed by an ophthalmologist as follows:

Corrected visual acuity (extent to which an object can be brought into focus) on the Snellen Scale must be less than or equal to 6/60 in both eyes; or
Constriction to within 10 degrees or less of arc of central fixation in the better eye, irrespective of corrected visual acuity (i.e. visual fields are reduced to a measured arc of 10 degrees or less); or
A combination of visual defects resulting in the same degree of visual impairment as that occurring in the above points. (An optometrist report is not sufficient for NDIS purposes.)

Permanent bilateral hearing loss > 90 decibels in the better ear (pure tone average of 500Hz, 1000Hz, 2000Hz and 4000Hz).
Deafblindness confirmed by ophthalmologist and audiologist and assessed as resulting in permanent and severe to total impairment of visual function and hearing.
Amputation or congenital absence of two limbs.

List B - Permanent conditions for which functional capacity are variable and further assessment of functional capacity is generally required.

1.Conditions primarily resulting in Intellectual/ learning impairment

Intellectual disability
Pervasive developmental disorders not meeting severity criteria in List A or List C
Asperger syndrome
Atypical autism
Childhood autism.

Chromosomal abnormalities resulting in permanent impairment and not specified on List A:

Aicardi-Goutières syndrome
CHARGE syndrome
Cockayne syndrome Types I and Type II/Cerebro-oculo-faciao-skeletal (COFS) syndrome /Pena Shokeir syndrome Type II/Weber-Cockayne syndrome/Neill-Dingwall syndrome)
Cohen syndrome
Dandy-Walker syndrome
DiGeorge syndrome /22q11.2 deletion syndrome/Velocardiofacial syndrome/ Shprintzen syndrome/Conotruncal anomaly face syndrome
Down syndrome
Fragile X syndrome
Kabuki syndrome
Menkes disease
Prader-Willi syndrome
Seckel syndrome /microcephalic primordial dwarfism/Harper’s syndrome/Virchow-Seckel dwarfism
Smith-Lemli-Optiz syndrome
Smith-Magenis syndrome
Spinal muscular atrophy Types III and IV
Sturge-Weber syndrome
Trisomy 9
Tuberous sclerosis
Turner syndrome
Williams syndrome
Wolf-Hirschhorn syndrome.

2. Conditions primarily resulting in Neurological impairment

Alzheimer’s dementia
Creutzfeldt-Jakob disease
HIV dementia
Huntington’s disease
Multi-infarct dementia
Parkinson’s disease
Post-polio syndrome
Vascular dementia.

Systemic atrophies primarily affecting the central nervous system:

Abetalipoproteinaemia
Adult-onset spinal muscular atrophy/late-onset SMA type III)
Fazio-Londe disease/Progressive bulbar palsy of childhood
Friedrich’s ataxia
Hereditary spastic paraplegia/ Infantile-onset ascending hereditary spastic paralysis/ L1 syndrome/ spastic paraplegias types 2 and 11Huntington’s disease/Huntington’s chorea
Louis-Bar syndrome/Ataxia-telangiectasia
Motor neuron disease/Motor neurone disease/ Lou Gehrig’s disease /Amyotrophic lateral sclerosis
Primary lateral sclerosis
Progressive bulbar palsy
Spinal muscular atrophy – all types
Spinocerebellar Ataxia – all types, including Machado-Joseph disease.

Extrapyramidal and movement disorders

Hallervorden-Spatz syndrome /Pantothenate kinase-associated neurodegeneration (PKAN)/neurodegeneration with brain iron accumulation 1 (NBIA 1)
Parkinson’s disease
Shy-Drager syndrome /Multiple System Atrophy /Striatonigral degeneration (MSA-P)/ Sporadic olivopontocerebellar atrophy (MSA-C)
Steele-Richardson-Olszewski syndrome/Progressive supranuclear ophthalmoplegia
Stiff-man syndrome /Stiff-person syndrome.

Other degenerative diseases of the nervous system

Alzheimer’s disease
Alpers disease/Grey-matter degeneration/Alpers syndrome/progressive sclerosing poliodystrophy/progressive infantile poliodystrophy
Lewy body dementia
Pick’s disease.

Demyelinating diseases of the central nervous system

Adrenoleukodystrophy
Multiple sclerosis
Schilder’s disease /Diffuse myelinoclastic sclerosis – non-remitting.

Episodic and paroxysmal disorders

Brain stem stroke syndrome
Cerebellar stroke syndrome
Motor and sensory lacunar syndromes
Lennox syndrome /Lennox-Gastaut syndrome
West’s syndrome.

Polyneuropathies and other disorders of the peripheral nervous system

Adult Refsum disease
Charcot-Marie-Tooth disease/Hereditary motor and sensory neuropathy/ peroneal muscular atrophy
Dejerine-Sottas disease /Dejerine-Sottas syndrome/Dejerine-Sottas neuropathy/progressive hypertrophic interstitial polyneuropathy of childhood/onion bulb neuropathy
Infantile Refsum disease.

Other disorders of the nervous system

Hydrocephalus
Multiple system atrophy.

3. Conditions resulting in Physical impairment

Amputations
Congenital absence of limb or part thereof
Epidermolysis bullosa
Harlequin type icthyosis
Juvenile arthritis / Stills Disease (excluding monocyclic/self-limited Adult Onset Stills disease)
Rheumatoid arthritis.

Diseases of myoneural junction and muscle

Andersen-Tawil syndrome/ Periodic paralysis /myoplegia paroxysmalis familiaris
Becker muscular dystrophy
Congenital muscular dystrophy
Distal muscular dystrophy
Duchenne muscular dystrophy
Facioscapulohumeral muscular dystrophy
Limb-girdle muscular dystrophy
Mitochondrial myopathy
Myotonic dystrophy /dystrophia myotonica
Myotonic muscular dystrophy
Myotubular myopathy
Oculopharyngeal muscular dystrophy
Paramyotonia Congenita
Thomsens disease /Congenital myotonia/ Becker myotonia).

Cerebral palsy and other paralytic syndromes not meeting severity criteria on List A

Cerebral palsy
Diplegia
Hemiplegia
Monoplegia
Paraplegia
Quadriplegia
Tetraplegia.

4. Conditions resulting in Sensory and/or Speech impairment

Disorders of the choroid and retina where permanent blindness diagnostic and severity criteria on List A are not met:

Behr’s syndrome
Kearns-Sayre syndrome
Optic atrophy
Retinitis pigmentosa
Retinoschisis (degenerative and hereditary types/juvenile retinoschisis)
Stargardt disease
Usher syndrome.

Disorders resulting in hearing loss

Cortical deafness
Pendred syndrome
Sensorineural hearing loss
Stickler syndrome
Usher syndrome
Waardenburg syndrome.

5. Conditions resulting in multiple types of impairment

Aceruloplasminemia
Addison-Schilder disease /Adrenoleukodystrophy
Albinism
Arginosuccinic aciduria
Aspartylglucosaminuria
Cerebrotendinous xanthomatosis /cerebral cholesterosis
Congenital cytomegalovirus infection
Congenital iodine-deficiency syndrome /cretinism
Congenital rubella syndrome
Glycine encephalopathy /non-ketotic hyperglycinaemia
GM1 gangliosidosis
Hartnup disease
Homocystinuria
Lowe syndrome/ Oculocerebrorenal syndrome
Mannosidosis
Menkes disease
Mucolipidosis II /I-cell disease
Mucolipidosis III /pseudo-Hurler polydystrophy
Mucolipidosis IV
Neuronal ceroid lipofuscinosis (NCL)/ Adult type (Kuf’s or Parry’s disease)/ Juvenile (Batten disease)/ Late infantile (Jansky-Bielschowsky)
Niemann-Pick disease
Pyruvate carboxylase deficiency
Pyruvate dehydrogenase deficiency
Sialidosis
Sulfite oxidase deficiency.

The following mucopolysaccharidoses:

Scheie syndrome /MPS 1-H
Hurler-Scheie syndrome /MPS 1 H-S
Hunter syndrome /MPS II
Morquio syndrome /MPS IVA
Maroteaux-Lamy syndrome /MPS VI
Sly syndrome /MPS VII.

Congenital conditions – cases where malformations cannot be corrected by surgery or other treatment and result in permanent impairment but with variable severity:

Arnold-Chiari Types 2 and 3/Chiari malformation
Microcephaly
Fetal alcohol syndrome
Fetal hydantoin syndrome
Spina bifida
VATER syndrome /VACTERL association.

List D - Permanent impairment/Early intervention, under 7 years - no further assessment required

Synonyms for conditions are also shown (e.g. condition / synonym / synonym)
1. Conditions primarily resulting in Intellectual/ learning impairment

Chromosomal abnormalities resulting in permanent impairment:

Global Developmental Delay
Aicardi syndrome
Aicardi-Goutières syndrome
Angelman syndrome
CHARGE syndrome
Cockayne syndrome/ Types I and Type II / Cerebro-oculo-faciao-skeletal (COFS) syndrome/ Pena Shokeir syndrome Type II / Weber-Cockayne syndrome/ Neill-Dingwall syndrome
Coffin-Lowry syndrome
Cohen syndrome
Cornelia de Lange syndrome
Cri du Chat syndrome
Dandy-Walker syndrome
DiGeorge syndrome/ 22q11.2 deletion syndrome/ Velocardiofacial syndrome/ Shprintzen syndrome/ Conotruncal anomaly face syndrome
Down syndrome
Edwards syndrome/ Trisomy 18
Fragile X syndrome
Kabuki syndrome
Lesch-Nyhan syndrome/ Nyhan’s syndrome/ Kelley-Seegmiller syndrome/ Juvenile gout
Leigh syndrome/ Leigh’s disease/ subacute necrotizing encephalomyelopathy
Menkes disease
Patau syndrome/ Trisomy 13
Prader-Willi syndrome
Rett syndrome
Seckel syndrome/ microcephalic primordial dwarfism/ Harper’s syndrome/ Virchow-Seckel dwarfism
Smith-Lemli-Optiz syndrome
Smith-Magenis syndrome
Sturge-Weber syndrome
Trisomy 9
Tuberous sclerosis
Williams syndrome
Wolf-Hirschhorn syndrome.

2. Conditions primarily resulting in Neurological impairment

Systemic atrophies primarily affecting the central nervous system:

Friedrich’s ataxia
Hereditary spastic paraplegia/ Infantile-onset ascending hereditary spastic paralysis/ L1 syndrome/ spastic paraplegias types 2 and 11
Louis-Bar syndrome/ Ataxia-telangiectasia
Niemann-Pick disease (Types A and C)
Progressive bulbar palsy of childhood/ Fazio-Londe disease.

The following spinal muscular atrophies:

Spinal muscular atrophy Type I/ Werdnig Hoffmann disease/ infantile SMA
Spinal muscular atrophy Type II/ Dubowitz disease
Spinal muscular atrophy Type III Kugelberg-Welander disease/ juvenile SMA
Spinal muscular atrophy lower extremity dominant/ SMA-LED
X-linked spinal muscular atrophy.

Extrapyramidal and movement disorders:

Hallervorden-Spatz syndrome / Pantothenate kinase-associated neurodegeneration (PKAN)/ neurodegeneration with brain iron accumulation 1 (NBIA 1)
Alpers disease/ Alpers syndrome/ Grey-matter degeneration/ Progressive sclerosing poliodystrophy/ Progressive infantile poliodystrophy
Demyelinating diseases of the central nervous system
Adrenoleukodystrophy / X-linked childhood cerebral form
Alexander disease
Canavan disease
Krabbe disease/ Globoid cell leukodystrophy
Pelizaeus-Merzbacher disease.

Episodic and paroxysmal disorders:

Lennox-Gastaut syndrome/ Lennox syndrome
West’s syndrome.

Polyneuropathies and other disorders of the peripheral nervous system:

Dejerine-Sottas disease/ Dejerine-Sottas syndrome/ Dejerine-Sottas neuropathy/ progressive hypertrophic interstitial polyneuropathy of childhood/onion bulb neuropathy
Infantile Refsum disease.

3. Conditions primarily resulting in Physical impairment

Amputations
Diamond-Blackfan anaemia
Epidermolysis bullosa
Harlequin type icthyosis
Hay Wells syndrome/ ankyloblepharon/ ectodermal dysplasia/ clefting [AEC] syndrome
Joint or limb deformities resulting in impaired mobility
Juvenile arthritis/ Stills Disease
Osteogenesis imperfecta
Sjogren Larsson syndrome.

Diseases of myoneural junction and muscle

Congenital muscular dystrophy
Congenital myotonia / Thomsens disease/ Becker myotonia
Distal muscular dystrophy
Duchenne muscular dystrophy
Emery-Dreifuss muscular dystrophy
Facioscapulohumeral muscular dystrophy
Myotubular myopathy
Oculopharyngeal muscular dystrophy
Paramyotonia Congenita.

Cerebral palsy and other paralytic syndromes

Cerebral palsy
Diplegia
Hemiplegia
Monoplegia
Paraplegia
Quadriplegia
Tetraplegia.

4. Conditions resulting in Sensory and/or Speech impairment

Permanent blindness in both eyes, diagnosed and assessed by an ophthalmologist as follows:
Corrected visual acuity (extent to which an object can be brought into focus) on the Snellen Scale must be less than or equal to 6/60 in both eyes; or
Constriction to within 10 degrees or less of arc of central fixation in the better eye, irrespective of corrected visual acuity (i.e. visual fields are reduced to a measured arc of 10 degrees or less); or
A combination of visual defects resulting in the same degree of visual impairment as that occurring in the above points.
(An optometrist report is not sufficient for NDIS purposes.)
Deafblindness confirmed by ophthalmologist and audiologist and assessed as resulting in permanent and severe to total impairment of visual function and hearing.

5. Conditions resulting in multiple types of impairment

Aceruloplasminemia
Addison-Schilder disease/ Adrenoleukodystrophy /
Albinism
Arginosuccinic aciduria
Aspartylglucosaminuria
Cerebrotendinous xanthomatosis/ cerebral cholesterosis
Congenital cytomegalovirus infection
Congenital hypothyroidism
Congenital iodine-deficiency syndrome /cretinism
Congenital rubella syndrome
Galactosaemia with long term learning disabilities and neurological impairment
Glycine encephalopathy/ non-ketotic hyperglycinaemia
GM1 gangliosidosis
Hartnup disease
Homocystinuria
Lowe syndrome/ Oculocerebrorenal syndrome
Mannosidosis
Menkes disease
Mucolipidosis II / I-cell disease
Mucolipidosis III / pseudo-Hurler polydystrophy
Mucolipidosis IV
Neuronal ceroid lipofuscinosis
Niemann-Pick disease
Phenylketonuria
Pyruvate carboxylase deficiency
Pyruvate dehydrogenase deficiency
Sialidosis
Sulfite oxidase deficiency.

The following mucopolysaccharidoses:

Hurler syndrome/MPS1-H
Scheie syndrome/ MPS 1-S
Hurler-Scheie syndrome/ MPS 1 H-S
Hunter syndrome/ MPS II
San Fillipo syndrome/ MPS III
Morquio syndrome/ MPS IVA
Maroteaux-Lamy syndrome/ MPS VI
Sly syndrome/ MPS VII.

The following lysosomal storage disorders:

Gaucher disease Types 2 and 3
Niemann-Pick disease (Types A and C)
Pompe disease
Sandhoff disease (infantile form)
Schindler disease (Type 1)
Tay-Sachs disease (infantile form).

Congenital conditions – cases where malformations cannot be corrected by surgery or other treatment and result in permanent impairment:

Chiari malformation/Arnold-Chiari malformation
Congenital absence of limb(s)
Congenital hydrocephalus
Fetal alcohol syndrome
Fetal hydantoin syndrome
Microcephaly
Spina bifida
VATER syndrome (VACTERL association).

Hope this info helps some one.
cheers, Mario