I finally got a diagnosis.

Hi Guys sorry I haven't got back to you a bit going on here. The Meds are helping to some degree, early days yet so with take time to get it right. The fludrocortisone is making my dizziness and fainting more manageable, I am now getting the trembles in my hands and swelling in my right arm, . If I can get rid of the painful Cramps then I think My quality of life will improve. On another note, my catheters I have been using went from $3.90 to $7.02 per unit, now that is just a shocking inflation and rip off on something one is dependent on 6 times a day.How do they justify that?
Cheers, Mario

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Originally Posted by Roverlord off road spares

Hi Guys sorry I haven't got back to you a bit going on here. The Meds are helping to some degree, early days yet so with take time to get it right. The fludrocortisone is making my dizziness and fainting more manageable, I am now getting the trembles in my hands and swelling in my right arm, . If I can get rid of the painful Cramps then I think My quality of life will improve. On another note, my catheters I have been using went from $3.90 to $7.02 per unit, now that is just a shocking inflation and rip off on something one is dependent on 6 times a day.How do they justify that?
Cheers, Mario

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Hi Mario. pm me your catheters details and or ask your Doctor if wholesale price could be available to you. I do it for a heap of people who see my doctors with a number of products. The internet is also often a way to cut a few costs just ensure its not also a cut in quality of course mate

Cheer James AKA ND

Thoughts are with you, Mario and Heather.

I repeat my offer: If I can help, even with going to the PO, let me know. You know where I live.

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Originally Posted by Roverlord off road spares

HI guys wish us luck we sent all the NDIS paper work and reports on Mario , Via email. We did get an email back saying that they have it.
So it is a waiting game now. Hope it doesn't take to long. Heather

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Hope you get the best result fast.

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Originally Posted by DiscoMick

Hope you get the best result fast.

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I received a call yesterday, It appears I have been accepted to the NDIS and need to organise meeting to do a care plan.

They Urology Dept of the Hospital fitted an 8 week catheter with a shut off valve yesterday. So Financially it's a win, a 8 weeks cath is $8 and the valve about $9 every 10 days, a district nurse will come to do the cath change every 8 weeks. ( and I only just Bought $500 worth of Caths last week grrrrr for the month ahead)

Neurologist appt this morning and doctors tomoz that hopefully will be it until after christmas for me.

FINALLY. FINALLY. FINALLY. They have listened to you. [emoji106][emoji106]

Excellent news!

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Originally Posted by Roverlord off road spares

I received a call yesterday, It appears I have been accepted to the NDIS and need to organise meeting to do a care plan.

They Urology Dept of the Hospital fitted an 8 week catheter with a shut off valve yesterday. So Financially it's a win, a 8 weeks cath is $8 and the valve about $9 every 10 days, a district nurse will come to do the cath change every 8 weeks. ( and I only just Bought $500 worth of Caths last week grrrrr for the month ahead)

Neurologist appt this morning and doctors tomoz that hopefully will be it until after christmas for me.

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So your ol' feller now has a cock? [bigwhistle]
All the best with it, mate. [bigsmile1]

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Originally Posted by V8Ian

So your ol' feller now has a cock? [bigwhistle]
All the best with it, mate. [bigsmile1]

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I can't un-read that.....

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Originally Posted by V8Ian

So your ol' feller now has a cock? [bigwhistle]
All the best with it, mate. [bigsmile1]

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on tap[biggrin]