I finally got a diagnosis.

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Originally Posted by DiscoMick

Exercise is good. Use it or lose it.
I can recommend water aerobics as a safe way of moving and pushing against the water is the useful exercise. Lots of people with mobility issues do it as a safe, non damaging exercise. Plus you get a swim, which is nice in a warm pool in winter.

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Mick water at the moment is no for me with Bladder problems, I was due to start an intensive 10 week pain management sessions 3 hrs a day twice a week , the last consultation I didn't resent well. They phoned me a few days before the start date to say they had called it off. They didn't think I would be able to handle the 3 hour sessions, so left it for again for review until next Jan.

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Originally Posted by Roverlord off road spares

Tom, your a saint.
Fishing for me is a down the track at the moment, It takes some times two people to get me out of a car or up off a chair, when my muscles go weak I dont have the strength to lift my leg or to drag myself with my arms, my legs sometimes stop working so I would only be a beached whale. I ring and annoy my mates all the time and ask how they are going out on their boats, and have a fishing FB page , so that's the gfor me at the moment.
I attend Old Peoples Exercise classes every week and have progressed to lifting 1 kg dumb bells to chest height. The young Instructor loves fishing so I got into his ear about getting me up to strength to go fishing.
My doctor has been told if he wants to go fishing with me so I can teach his kids he needs to get me well enough, he said one day I'll be able to go. He also promised me I 'm not going to die whilst on his shift so that's reassuring.

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Well when you are well enough, let Dave (blknight)and I know and I will make the trip down and WE WILL take you fishing. I have a 14' 6" aluminium runabout, but if you are in a wheel chair we may need something bigger. I have a NSW boating license, which I assume is ok for VIC? Anyway, let us know and we will make it happen.

Chin up mate, as Dave said, we're only a phone call away. We might not have the magic answer, but we can talk...


Tom.

P.S 0413 976 143 if you want or need to speak

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Originally Posted by BathurstTom

Well when you are well enough, let Dave (blknight)and I know and I will make the trip down and WE WILL take you fishing. I have a 14' 6" aluminium runabout, but if you are in a wheel chair we may need something bigger. I have a NSW boating license, which I assume is ok for VIC? Anyway, let us know and we will make it happen.

Chin up mate, as Dave said, we're only a phone call away. We might not have the magic answer, but we can talk...


Tom.

P.S 0413 976 143 if you want or need to speak

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Hi Tom, no need to tow yours I have my 18 footer sitting idle in the driveway.
Cheers, Mario

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Originally Posted by Roverlord off road spares

Mick water at the moment is no for me with Bladder problems, I was due to start an intensive 10 week pain management sessions 3 hrs a day twice a week , the last consultation I didn't resent well. They phoned me a few days before the start date to say they had called it off. They didn't think I would be able to handle the 3 hour sessions, so left it for again for review until next Jan.

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Micks on the money Mario. Moving helps everything. An exercise physiologist or physio can help. Ask your Doctor re a Care plan (MBS Items 721 723) almost certain your now eligible for those. They can help pay for a exercise physiologist or physio to help you keep moving and even get stronger.
Attachment 155476

Not trying to be Arnie[thumbsupbig]. Was in a rehab hospital for a month. the Fitter 90 year olds got home a lot faster than the couch potatoes 60 year olds honest even with the same knee replacements

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Originally Posted by Roverlord off road spares

My BP is fine whilst I sit or lay down, but movement is the problem, its orthostatic hypertension that's the problem. If I get up and dont pump my legs a bit before to pump blood back to the head then the blood leaves the brain, causing my muscles to collapse and hence the falls , so meds to raise BP will increase the BP whilst resting , so they need to tweak it after some tests are done.

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Quote:

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Originally Posted by Roverlord off road spares

Tom, your a saint.
Fishing for me is a down the track at the moment, It takes some times two people to get me out of a car or up off a chair, when my muscles go weak I dont have the strength to lift my leg or to drag myself with my arms, my legs sometimes stop working so I would only be a beached whale. I ring and annoy my mates all the time and ask how they are going out on their boats, and have a fishing FB page , so that's the gfor me at the moment.
I attend Old Peoples Exercise classes every week and have progressed to lifting 1 kg dumb bells to chest height. The young Instructor loves fishing so I got into his ear about getting me up to strength to go fishing.
My doctor has been told if he wants to go fishing with me so I can teach his kids he needs to get me well enough, he said one day I'll be able to go. He also promised me I 'm not going to die whilst on his shift so that's reassuring.

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2 words Mario,

Challenge accepted.

It only takes a week to co-ord an axle replacement over 3 states and 1100ish Km. Less than half a day to co-ord an engine pull and strip.

Arkies pretty wheel chair friendly, Im no slouch in the muscles department. Bet I can find a beach I can get you onto, get some ground plates to put the chair on for you or a jetty to hit...

I'll give even money that theres another member or 3 in melb somewhere that actually knows fishing, we'll come round I'll have a look at the boat and I'll bet its wheelchair friendly by xmas...

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Originally Posted by Blknight.aus

2 words Mario,

Challenge accepted.

It only takes a week to co-ord an axle replacement over 3 states and 1100ish Km. Less than half a day to co-ord an engine pull and strip.

Arkies pretty wheel chair friendly, Im no slouch in the muscles department. Bet I can find a beach I can get you onto, get some ground plates to put the chair on for you or a jetty to hit...

I'll give even money that theres another member or 3 in melb somewhere that actually knows fishing, we'll come round I'll have a look at the boat and I'll bet its wheelchair friendly by xmas...

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You are a good man BK.

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Originally Posted by NavyDiver

Micks on the money Mario. Moving helps everything. An exercise physiologist or physio can help. Ask your Doctor re a Care plan (MBS Items 721 723) almost certain your now eligible for those. They can help pay for a exercise physiologist or physio to help you keep moving and even get stronger.
Attachment 155476

Not trying to be Arnie[thumbsupbig]. Was in a rehab hospital for a month. the Fitter 90 year olds got home a lot faster than the couch potatoes 60 year olds honest even with the same knee replacements

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I.m still under the Eastern Health care so am sure there's more help avail just the red tape and times. My doc did the NDIS application forms yesterday, my illness is on the ndis prefered list of illnesses, so this time they might not knock me back???? just need to get an updated OT report to send with it.

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Originally Posted by Blknight.aus

2 words Mario,

Challenge accepted.

It only takes a week to co-ord an axle replacement over 3 states and 1100ish Km. Less than half a day to co-ord an engine pull and strip.

Arkies pretty wheel chair friendly, Im no slouch in the muscles department. Bet I can find a beach I can get you onto, get some ground plates to put the chair on for you or a jetty to hit...

I'll give even money that theres another member or 3 in melb somewhere that actually knows fishing, we'll come round I'll have a look at the boat and I'll bet its wheelchair friendly by xmas...

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LOL Dave, I'm not in a chair yet, let me take one step at a time, fishing is a while offf yet. [biggrin]

Mario, the NDIS can be a minefield to negotiate. A friend of mine got a very good outcome for her disabled son but it took a lot of knowledge of the system and knowing who to talk to. She may be able to offer some advice if you need it.
Cheers
Bruce

Started my Medication called Kinson , ( used to treat Parkinsons) I have Already noticed a bit of improvement in muscle movement and my walking, the pain has also lessened.