Thread: I thought I could do it, but no.

Originally Posted by 4runnernomore

Hi Mario,

on the pain front If the normal chemical meds aren’t working have the Doctors considered medicinal marijuana?. From all accounts it apparently is quite effective for pain relief.

keep your chin up with the with NDIS. painfully normal government organisation. Always seem to make things harder than what they need to be.


all the best to you and Heather

cheers, Chris

Hi Chris, tried the hooch oil,endone, tramadol, morphine patches, and other meds . taking lyrica at the moment for the nerve pains in my feet, the lightening storm in the nervous system in my feet have eased to tolerable, but the other pains are caused by muscle cramping when i stand. If you ever ever experienced the pain from a really severe muscle crap in your leg, imagine that pain within standing for a couple of minutes, It pulls me into a stoop forward position , i then start screaming , Heather rushes to my aid and gets me to a seat or to the bedroom to lay on the bed flat.
I asked the Doc about whether Botox injections might Help, going to investigate this .
cheers, Mario

Originally Posted by Roverlord off road spares

Hi Chris, tried the hooch oil,endone, tramadol, morphine patches, and other meds . taking lyrica at the moment for the nerve pains in my feet, the lightening storm in the nervous system in my feet have eased to tolerable, but the other pains are caused by muscle cramping when i stand. If you ever ever experienced the pain from a really severe muscle crap in your leg, imagine that pain within standing for a couple of minutes, It pulls me into a stoop forward position , i then start screaming , Heather rushes to my aid and gets me to a seat or to the bedroom to lay on the bed flat.
I asked the Doc about whether Botox injections might Help, going to investigate this .
cheers, Mario

As said by so many others we feel for you Mario (and Heather). I don't understand how someone who has done so much for others can end up being treated like this. Karma gone krazy!

I'm supposing from your comments that something as simple as magnesium doesn't help with the cramps?

Originally Posted by gavinwibrow

As said by so many others we feel for you Mario (and Heather). I don't understand how someone who has done so much for others can end up being treated like this. Karma gone krazy!

I'm supposing from your comments that something as simple as magnesium doesn't help with the cramps?

I used to get weekly intravenous infusions of Magnesium it didn't much. It did however set fire to the groin area and make my head feel like it was about to explode when it give a large dose instead controlled infusion..

I have patiently waited for an electric lift chair that was approved and ordered, it was to take 4-6 weeks to manufacture. So I've been waiting patiently. Heather has to assisting in lifting me up from the chair and has injured her knee again as a result. Yesterday i thought it will come any day now and it would be easier on us , Well I was wrong.
My OT has been chasing it up and this is the reply she got from the NDIA.

I just went to have a look at Mario’s file – it looks like whoever had approved and made the service booking had made a mistake and made it to the wrong company, probably mistyped a number in the provider’s NDIS number. I’ll see if I can cancel it and create a new one without needing to do LTR – will look into it today.

Damn, now probably another 4 -6 weeks of waiting

Originally Posted by Roverlord off road spares

I have patiently waited for an electric lift chair that was approved and ordered, it was to take 4-6 weeks to manufacture. So I've been waiting patiently. Heather has to assisting in lifting me up from the chair and has injured her knee again as a result. Yesterday i thought it will come any day now and it would be easier on us , Well I was wrong.
My OT has been chasing it up and this is the reply she got from the NDIA.

I just went to have a look at Mario’s file – it looks like whoever had approved and made the service booking had made a mistake and made it to the wrong company, probably mistyped a number in the provider’s NDIS number. I’ll see if I can cancel it and create a new one without needing to do LTR – will look into it today.

Damn, now probably another 4 -6 weeks of waiting

Sorry Mario, I don't get this. "4-6 weeks to manufacture". That is just stalling. You can buy lift chairs off the shop floor, Lazyboy do them. I have my Grandmother's old lift chair here and if I lived in Vic I would just deliver it to you.

From what I have read here and other places, as government departments go, the NDIS is the worst of the worst. And this is really sad as they are supposed to be there to help some of the most vulnerable in the community to maintain a quality of life and some independence.

I truely hope things improve for you and Heather both with the NDIS and relief for you condition.

Originally Posted by ChookD2

Sorry Mario, I don't get this. "4-6 weeks to manufacture". That is just stalling. You can buy lift chairs off the shop floor, Lazyboy do them. I have my Grandmother's old lift chair here and if I lived in Vic I would just deliver it to you.

From what I have read here and other places, as government departments go, the NDIS is the worst of the worst. And this is really sad as they are supposed to be there to help some of the most vulnerable in the community to maintain a quality of life and some independence.

I truely hope things improve for you and Heather both with the NDIS and relief for you condition.

The lift chair question is not a run of the mill chair, it is custom made to suit me. Ie Height from floor my long legs, my weight , it has heavy duty motors, Special padding to stop me getting pressure sores,head support height, independent motors to operate independently for functions. controls to the left side as i am left handed. all up nearly $4K

Originally Posted by Roverlord off road spares

The lift chair question is not a run of the mill chair, it is custom made to suit me. Ie Height from floor my long legs, my weight , it has heavy duty motors, Special padding to stop me getting pressure sores,head support height, independent motors to operate independently for functions. controls to the left side as i am left handed. all up nearly $4K

Ok, fair enough. I still would have delivered the chair I have to get you by until yours arrives.

I just got3 emails,
1 to say the fabric chosen is out of stock now. and another 2-3 weeks delay, and nother email from the NDIS bureaucrat planner saynng.
Hi Rachel/Heather/Mario

Oh dear, I hadn’t realised that Mobility Aids was being operated by Independence Australia.
When you emailed this morning asking if I could follow up with it and I saw that the name to the company was different, I had thought that perhaps the reason why Mobility Aids had said no service booking was created was because it was another company.

However according to the email below from Hxxxxy it looks like Mobility Aids is Independence Australia Group – Health Solutions.



I had already cancelled the service which now nullifies it.


Unfortunately I will have to do another light touch review to your plan Mario, which I had been trying to avoid with the rentals earlier this week but now we don’t have too much choice if I’m to process this ASAP. This does mean your support coordinator will have to help you to redo all your service agreements.

As soon as I get your consent to do it, I will initiate and rebuild your plan and redo the service booking again for the recliner chair.
I will also be creating another service booking for the PWC rental with Linds rehab unfortunately.

Can you confirm if you had started the process of accessing your core funding for the rental of the high-low bed? If not – I’ll also create a line item for the rental for that in your Capitals funding now too so you don’t have to touch the funding in core for it.

I'm a bit peed off to say the least.