Thread: What a friday.

Originally Posted by Roverlord off road spares

Busy day. Had a Speech pathologist call around to see me and study my eating , swallowing and Voice functions. There are some changes and she will give me a list of strategies.So far a modified diet is not needed but later I will. I have to be careful with liguids like water and tea that drain down the throat quickly as they can enter my lungs when my throat muscles dont function correctly, same as some foods. I will have to learn to talk slower and breathe between words so I dont mumble, ppl are telling me they cant hear me and understand what I am saying. Also bending my head forward restricts my breathing.

Next was my Neuro Physio appointment, was about to leave for that but found my catheter was blocked. So had to ring the physio to postponed and ring the district nurse. The district nurse would not come and a said I needed a doctor as I had some discharge. Doc was booked out so off to the emergency dept of local hospital. I took a new cach and valve with me. The doc and nurse had never done this type before so a of adviscefrom me we got it sorte. Itws blocked solid and no backflush would clear it. So fitted a new one.

By the time we got home orders had banked up and Heather was madly packing to make the last post cut off.
Then we had some ebay dick leave me a neg on my perfect brownie score LOL'

I got a letter also government about me taking a Parkison Med, and asked if I was interested in contacting a 3rd party study into Parkinsons by qimrbeghofer.edu.au. (There is no specific treatmnt for MSA so Parkinson Drugs are used)


I went online and registered and Said ok to a DNA sample and filled out the so called 15 min survey. I struggled for a hour on it. But I thought I might help someone. It wasnt until the end did it ask if you had Parkinsons, it gave no option on MSA, then next pages it asked if any relo did have any of the following and MSA was on the list, I had to tick yes and in the other relo section put myself. Interesting there was questions re using herbicides and caffeine usage.


off to bed after all that very exhausting day for me.

We all hope that Saturday is less frustrating for you

Originally Posted by Roverlord off road spares

Busy day. Had a Speech pathologist call around to see me and study my eating , swallowing and Voice functions. There are some changes and she will give me a list of strategies.So far a modified diet is not needed but later I will. I have to be careful with liguids like water and tea that drain down the throat quickly as they can enter my lungs when my throat muscles dont function correctly, same as some foods. I will have to learn to talk slower and breathe between words so I dont mumble, ppl are telling me they cant hear me and understand what I am saying. Also bending my head forward restricts my breathing.

Next was my Neuro Physio appointment, was about to leave for that but found my catheter was blocked. So had to ring the physio to postponed and ring the district nurse. The district nurse would not come and a said I needed a doctor as I had some discharge. Doc was booked out so off to the emergency dept of local hospital. I took a new cach and valve with me. The doc and nurse had never done this type before so a of adviscefrom me we got it sorte. Itws blocked solid and no backflush would clear it. So fitted a new one.

By the time we got home orders had banked up and Heather was madly packing to make the last post cut off.
Then we had some ebay dick leave me a neg on my perfect brownie score LOL'

I got a letter also government about me taking a Parkison Med, and asked if I was interested in contacting a 3rd party study into Parkinsons by qimrbeghofer.edu.au. (There is no specific treatmnt for MSA so Parkinson Drugs are used)


I went online and registered and Said ok to a DNA sample and filled out the so called 15 min survey. I struggled for a hour on it. But I thought I might help someone. It wasnt until the end did it ask if you had Parkinsons, it gave no option on MSA, then next pages it asked if any relo did have any of the following and MSA was on the list, I had to tick yes and in the other relo section put myself. Interesting there was questions re using herbicides and caffeine usage.


off to bed after all that very exhausting day for me.

Bloody hell! So the day wasn't really a waste then, Mario?

Originally Posted by 87County

We all hope that Saturday is less frustrating for you

Nah Sat and Sun trying up loose ends so we can close for the next couple of weeks to organise things, end of financial year coming, getting time to redo wills, ,clean up, wont be a holiday it will just be time to get lose ends sorted. Got meetings with OT and Builders again.