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Thread: I finally got a diagnosis.

  1. #41
    Roverlord off road spares is offline AT REST
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    Hi Guys sorry I haven't got back to you a bit going on here. The Meds are helping to some degree, early days yet so with take time to get it right. The fludrocortisone is making my dizziness and fainting more manageable, I am now getting the trembles in my hands and swelling in my right arm, . If I can get rid of the painful Cramps then I think My quality of life will improve. On another note, my catheters I have been using went from $3.90 to $7.02 per unit, now that is just a shocking inflation and rip off on something one is dependent on 6 times a day.How do they justify that?
    Cheers, Mario


  2. #42
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    NavyDiver is offline Very Very Lucky! Gold Subscriber
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    Quote Originally Posted by Roverlord off road spares View Post
    Hi Guys sorry I haven't got back to you a bit going on here. The Meds are helping to some degree, early days yet so with take time to get it right. The fludrocortisone is making my dizziness and fainting more manageable, I am now getting the trembles in my hands and swelling in my right arm, . If I can get rid of the painful Cramps then I think My quality of life will improve. On another note, my catheters I have been using went from $3.90 to $7.02 per unit, now that is just a shocking inflation and rip off on something one is dependent on 6 times a day.How do they justify that?
    Cheers, Mario
    Hi Mario. pm me your catheters details and or ask your Doctor if wholesale price could be available to you. I do it for a heap of people who see my doctors with a number of products. The internet is also often a way to cut a few costs just ensure its not also a cut in quality of course mate

    Cheer James AKA ND

  3. #43
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    Thoughts are with you, Mario and Heather.

    I repeat my offer: If I can help, even with going to the PO, let me know. You know where I live.
    ​JayTee

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  4. #44
    DiscoMick Guest
    Quote Originally Posted by Roverlord off road spares View Post
    HI guys wish us luck we sent all the NDIS paper work and reports on Mario , Via email. We did get an email back saying that they have it.
    So it is a waiting game now. Hope it doesn't take to long. Heather
    Hope you get the best result fast.

  5. #45
    Roverlord off road spares is offline AT REST
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    Quote Originally Posted by DiscoMick View Post
    Hope you get the best result fast.
    I received a call yesterday, It appears I have been accepted to the NDIS and need to organise meeting to do a care plan.

    They Urology Dept of the Hospital fitted an 8 week catheter with a shut off valve yesterday. So Financially it's a win, a 8 weeks cath is $8 and the valve about $9 every 10 days, a district nurse will come to do the cath change every 8 weeks. ( and I only just Bought $500 worth of Caths last week grrrrr for the month ahead)

    Neurologist appt this morning and doctors tomoz that hopefully will be it until after christmas for me.


  6. #46
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    FINALLY. FINALLY. FINALLY. They have listened to you. I finally got a diagnosis.I finally got a diagnosis.

  7. #47
    DiscoMick Guest
    Excellent news!

  8. #48
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    Quote Originally Posted by Roverlord off road spares View Post
    I received a call yesterday, It appears I have been accepted to the NDIS and need to organise meeting to do a care plan.

    They Urology Dept of the Hospital fitted an 8 week catheter with a shut off valve yesterday. So Financially it's a win, a 8 weeks cath is $8 and the valve about $9 every 10 days, a district nurse will come to do the cath change every 8 weeks. ( and I only just Bought $500 worth of Caths last week grrrrr for the month ahead)

    Neurologist appt this morning and doctors tomoz that hopefully will be it until after christmas for me.
    So your ol' feller now has a cock?
    All the best with it, mate.
    If you don't like trucks, stop buying stuff.
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  9. #49
    16PMark Guest
    Quote Originally Posted by V8Ian View Post
    So your ol' feller now has a cock?
    All the best with it, mate.
    I can't un-read that.....

  10. #50
    Roverlord off road spares is offline AT REST
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    Quote Originally Posted by V8Ian View Post
    So your ol' feller now has a cock?
    All the best with it, mate.
    on tap


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