Thread: Parkinsons Disease

No advice for you, RB, but 'All the Best'!

I saw and know several long term Parkinson's survivors in my prior Medical admin/management role. I am not Medical!!

Good news was treatments are getting better rapidly! Better news was some of the LONG term I refer to was 20+ years!

Best of luck and chin up always mate.

I don't but my Grandmother did. She was being treated for severe osteo arthritis and Parkinsons. Her initial Osteo medication was seriously effective against her Parkinsons. When they moved her to different meds to treat her Arthritis her Parkinsons escalated and they wouldn't give her both the old and new. That was 11 years ago, and treatments are getting better but there's still a lot they don't know. Best wishes and a crapton of profanities in the hope you don't need them.

****;
****;
Poo;
Big Jobbie;
Crap;
Poop &;
Bugger.

* Swear filter test

Only what I've read. And that would be out of date. It's a tough break, Den. I hope you have good support.

Make of this what you will. I only include it because since I gave up my alcohol abuse this guy has helped me turn my life around big time. Maybe he will have something of use for you. Best wishes,

Sorry to hear your diagnosis. My wife was diagnosed early this year and we are both making adjustments to our lives. She qualifies for some assistance from My Aged Care, but actually getting some has involved a lot of time on phone calls and chasing round many different agencies. The medication she was put on takes a while to have any effect, unfortunately, and only slows it down. We did find quite a bit of useful information from an organisation called Fight Parkinson’s (1800 644 189), which included support groups in our area. Suggest you give them a call if you haven’t already, the lady Jeannie spoke to spent nearly an hour with her and then sent an email with plenty of information. Sadly it seems there is no cure, we just have to find a way to manage it, hopefully in a way that we can still get some enjoyment from life.
Hope you find the support and care that you will need, and that you are able to cross off a few items on your bucket list.
Best regards,
Woolly.

Thanks Wooly and to the others who replied.

Changes to lifestyle and social platforms have to happen and some already have occurred. The community response is very good and help/support groups are offering their assistance.

I'm only dealing with early onset which hopefully can be maintained. The medication I am taking is Kinson , 2 tabs/day increasing to 4 , hoping to avoid side effects.

I'm still hoping to go on a world cruise this time next year and I should be good at shuffleboard.

Den

Originally Posted by ramblingboy42

I'm still hoping to go on a world cruise this time next year and I should be good at shuffleboard.

Den

Love the sense of humour there, Den. With that attitude you'll be fine.